Rebecca’s fairly terrible, horrible, no-good, very bad day
Monday, January 28th, 2008 Posted in Ramblings, Trisomy-18 | 1 Comment »Well, today started off o.k. Got up fairly easily, went to work. It was so NICE not to have to do "getting ready for meeting" stuff and just be able to WORK. As the day progressed, I started feeling overwhelmed by ...
More about Poppy Joy
Saturday, December 8th, 2007 Posted in Ramblings, Trisomy-18 | No Comments »You can read more about the week since Poppy Joy was born and died here. The December 7 entry includes the video shown at her memorial service. It's beautiful. I'm also going to put it with Copeland's video in the ...
Poppy Joy
Saturday, December 1st, 2007 Posted in Ramblings, Trisomy-18 | No Comments »Meet Poppy Joy and her parents Nathan and Angie. Poppy Joy has trisomy-18. She was born today at 10:26 a.m. and lived for three hours. I know of about 10 trisomy-18 families (all via the Internet, although I met Copeland's parents at ...
Celebrating Copeland’s Life…
Saturday, September 29th, 2007 Posted in Ramblings, Trisomy-18 | No Comments »The memorial service was beautiful. Incredibly sad, but beautiful. After the service, I introduced myself to Copeland's parents and asked her mom if I could give her a hug. I told her the hug was from me and all the ...
No up!
Saturday, September 29th, 2007 Posted in Ramblings, Trisomy-18 | No Comments »Ed and I are driving to Brentwood, Tenn., today for Copeland Farley's memorial service. When the alarm went off at 5:30 a.m., I groaned, said "No up!" -- my traditional way of complaining about the freakishly EARLY hour my alarm ...
Copeland Farley
Thursday, September 27th, 2007 Posted in Ramblings, Trisomy-18 | 1 Comment »Copeland Fair Farley died yesterday. Click here to read about her extraordinary life. It's remarkable that a stranger can touch thousands of other strangers as much as Copeland and her family has. I am changed in ways I may not fully ...
