From the category archives:

Trisomy-18

Well, today started off o.k. Got up fairly easily, went to work. It was so NICE not to have to do “getting ready for meeting” stuff and just be able to WORK.
As the day progressed, I started feeling overwhelmed by the sheer amount of STUFF I have to do. I could work 50+ hour weeks [...]

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You can read more about the week since Poppy Joy was born and died here. The December 7 entry includes the video shown at her memorial service. It’s beautiful. I’m also going to put it with Copeland’s video in the sidebar of this blog, should you want to look at it later.
She lived only three [...]

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Poppy Joy

by Rebecca on December 1, 2007 · 1 comment

in Ramblings, Trisomy-18

Meet Poppy Joy and her parents Nathan and Angie.
Poppy Joy has trisomy-18. She was born today at 10:26 a.m. and lived for three hours.
I know of about 10 trisomy-18 families (all via the Internet, although I met Copeland’s parents at her memorial service). Each family knew of their child’s condition fairly early in the pregnancy. [...]

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The memorial service was beautiful. Incredibly sad, but beautiful. After the service, I introduced myself to Copeland’s parents and asked her mom if I could give her a hug. I told her the hug was from me and all the “blog people” who’d posted they wished they could hug her.
I also met Copeland’s maternal grandparents. [...]

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No up!

by Rebecca on September 29, 2007 · 0 comments

in Ramblings, Trisomy-18

Ed and I are driving to Brentwood, Tenn., today for Copeland Farley’s memorial service. When the alarm went off at 5:30 a.m., I groaned, said “No up!” — my traditional way of complaining about the freakishly EARLY hour my alarm goes off most mornings.
Then I remembered Copeland’s family. Suddenly my having to get up so [...]

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Copeland Farley

by Rebecca on September 27, 2007 · 1 comment

in Ramblings, Trisomy-18

Copeland Fair Farley died yesterday. Click here to read about her extraordinary life.
It’s remarkable that a stranger can touch thousands of other strangers as much as Copeland and her family has. I am changed in ways I may not fully understand for a long time.
God bless Conor, Boothe, Sellers and all those who love her [...]

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